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("Continuity of Patient Care"[MeSH Terms] OR ("continuity of care"[Title/Abstract] OR "care continuity"[Title/Abstract] OR "care continuum"[Title/Abstract] OR "continuum of care"[Title/Abstract] OR "continuity patient care"[Title/Abstract:~4] OR "continuum patient care"[Title/Abstract:~4] OR "transition care"[Title/Abstract:~2] OR "transitional care"[Title/Abstract] OR "aftercare"[Title/Abstract] OR "home transition"[Title/Abstract:~2] OR "patient transfer"[Title/Abstract:~4] OR "patient discharge"[Title/Abstract:~4] OR "loss to follow up"[Title/Abstract])) AND ("Hemophilia B"[MeSH Terms] OR "Hemophilia A"[MeSH Terms] OR (("hemophilia*"[Title/Abstract] AND "OR"[Title/Abstract]) OR "christmas disease"[Title/Abstract] OR "Plasma Thromboplastin Component Deficiency"[Title/Abstract]))

Results

If the proposed solution includes electronic patient engagement through an app, the freely available RedCAP software must be used.

Calabrese, S., Lee, S., Mollica, M. A., Wiener, L., Mendley, S., Adams, L., & Blachman-Demner, D. (2022). Navigating pediatric to adult healthcare transition: A National Institutes of Health workshop. The Journal of Pediatrics, 244, 234–240.e1. https://doi.org/10.1016/j.jpeds.2022.01.052

Castillo, C., & Kitsos, E. (2017). Transitions from pediatric to adult care. Global Pediatric Health, 4. https://doi.org/10.1177/2333794X17744946

Marani, H., Fujioka, J., Tabatabavakili, S., & Bollegala, N. (2020). Systematic narrative review of pediatric-to-adult care transition models for youth with pediatric-onset chronic conditions. Children and Youth Services Review, 118. https://doi.org/10.1016/j.childyouth.2020.105415

Quon, D., Reding, M., Guelcher, C., Peltier, S., Witkop, M., Cutter, S., Buranahirun, C., Molter, D., Jane Frey, M., Forsyth, A., Tran, D. B., Curtis, R., Hiura, G., Levesque, J., de la Riva, D., Compton, M., Iyer, N. N., Holot, N., & Cooper, D. L. (2015). Unmet needs in the transition to adulthood: 18- to 30-year-old people with hemophilia: Unmet needs in young adults with hemophilia. American Journal of Hematology, 90, S17–S22. https://doi.org/10.1002/ajh.24219

Witkop, M., Guelcher, C., Forsyth, A., Quon, D., Hawk, S., Curtis, R., Cutter, S., Molter, D., & Cooper, D. L. (2015). Challenges in transition to adulthood for young adult patients with hemophilia: Quantifying the psychosocial issues and developing solutions. American Journal of Hematology, 90(S2), S1–S2. https://doi.org/10.1002/ajh.24217

Haggerty, J. L., Reid, R. J., Freeman, G. K., Starfield, B. H., Adair, C. E., & McKendry, R. (2003). Continuity of care: a multidisciplinary review. BMJ (Clinical research ed.), 327(7425), 1219–1221. https://doi.org/10.1136/bmj.327.7425.1219

Kripalani, S., LeFevre, F., Phillips, C. O., Williams, M. V., Basaviah, P., & Baker, D. W. (2007). Deficits in communication and information transfer between hospital-based and primary care physicians: implications for patient safety and continuity of care. JAMA, 297(8), 831–841. https://doi.org/10.1001/jama.297.8.831

van Walraven, C., Oake, N., Jennings, A., & Forster, A. J. (2010). The association between continuity of care and outcomes: a systematic and critical review. Journal of evaluation in clinical practice, 16(5), 947–956. https://doi.org/10.1111/j.1365-2753.2009.01235.x